My mother has Alzheimer's and dementia. She'll be 80 in a few months. For the last decade or so, her partner Andy has been taking care of her, but he's 85 himself and not able to continue. Since last summer, I've been taking on more and more of the daily responsibilities of taking care of my mother's needs, financially and legally and medically. And holy hell is it time-consuming. I had heard that it gets like this but I really had no idea.

I spend about 80-90% of my free time taking care of my mother. I'll frequently stay up until 12-2am answering emails from Andy, sending requests to her caregivers at her assisted living facility, scheduling appointments and companions for her, filling out forms and legal paperwork, placing orders for various things that she needs, and blocking out time in my work calendar for time that I'll have to take off to be in the room with her various doctors when she sees them. I'm on a first-name basis with her caregivers and lawyers. I keep a constantly-changing list of her medications and specialist doctors. I have come to dread checking my inbox or glancing at my buzzing phone because it's going to be more demands on my time and attention.

With Kelly dealing with her own recent medical crisis (3 surgeries and 15 days in the hospital so far), and a stressful work project that has me working overtime to meet difficult deadlines, I have been stretched really damn thin. It's gotten to a point that I have never reached before in my life, where I'm just failing outright to get things done. I pass out at midnight, unable to finish tasks that need to happen that night, because I just can't do any more. I reached a point this past week where I just surrendered and said I'm going to get done whatever I can and not stress any more if some things fall by the wayside because I'm human and have limits.

I have no idea how parents do it. I couldn't imagine trying to juggle all of this with kids on top of it. And my mother doesn't even live with me; being physically and immediately responsible for her needs would be even harder.

I'm saying all of this to illustrate why I've been absent from Funeratic for nine months and counting. I have so far been able to keep up with making goos, and I'll answer messages and concert challenges when they come up, but I really haven't had anywhere near the amount of time that I'd like to have to work on this website and interact with people here and add new content and do any of the numerous projects that I still think about. Funeratic is still big in my heart, but it gets a tiny sliver of my time because that's all that I have been able to give lately. Like I said, I'm trying to set more realistic limits starting this past week (and I'm trying to push more of my mother's care onto her very expensive professional caregivers where it belongs), so maybe I'll be able to make time for the site, but I certainly can't promise that.

Thanks for continuing to stick around. I'm not done with Funeratic.


Logical Operator

The creator of Funeratic, Scott Hardie, blogs about running this site, losing weight, and other passions including his wife Kelly, his friends, movies, gaming, and Florida. Read more »

Scott's Pet Peeve #2519

Why do some microwaves have a convenient quick-start option if you press 1 or 2 or 3, so that they instantly start cooking with 1:00 or 2:00 or 3:00 on the clock... but DON'T have this same functionality programmed into 4, 5, 6, 7, 8, or 9, which do nothing when pressed alone? How does an engineer possess both the vision to provide the former and the lack of imagination that results in the latter? Go »

All King and No Kubrick Make Jack a Dull Boy

I recently got to talking with friends who liked The Shining, both Stephen King's novel and Stanley Kubrick's film adaptation of it, but who were unaware that King has always loathed the movie, despite its reputation as one of the best horror films ever made. It's hard to imagine that a writer doesn't know his own work better than someone interpreting it, but I think this is one of those rare cases where the writer is just too close to the story to get it. Here are three reasons why I think Kubrick's film better understands the material, and is better overall, than King's novel: 1) In King's version, Jack Torrance is a fundamentally decent man who wouldn't hurt a fly, but who is down on his luck and desperate. Go »

Downtown Disney

My mom's birthday present to me was a mini-vacation in Orlando, since we're too broke to take a real vacation. We weighed the options for a few days, theme parks vs small local attractions, and settled on something we had wanted to do for years, DisneyQuest and some of the Downtown Disney complex around it. I knew DisneyQuest had a lot of motion-simulator and interactive video games, but I didn't realize that the entire 5-story building is just one giant video arcade. Go »

Documenting My Discomfiture

My company hired a new guy to do documentation a few weeks ago, Rajeev. I've seen him walking around talking to the software developers, and attending meetings with managers in glass-walled rooms. I've heard several managers praising Rajeev by name and telling me that we need to get Rajeev to review prior documentation before we begin on projects. Go »

Heart Burn

The recurring pericarditis that I mentioned elsewhere is now believed by my primary-care doctor to be heartburn or possibly an ulcer. The latter explanation is possible I suppose, but I'm skeptical about the former since it feels less like an acidic burning than like a sharp localized lower-chest pain such as a knife wound or bullet wound. Either way, it still keeps occurring every few weeks, it still hurts like a son of a bitch and keeps me awake all night, and I'm way beyond sick of it happening. Go »

Sarasota

Aaron Weiss likes taking pictures with his spiffy new camera – go figure – and yesterday he captured this beautiful panoramic shot of part of downtown Sarasota. This is why I live here. [I compressed his version for filesize, which caused the pixelization in the sky.] Go »